vitamin D Deficiency

We're all more than just our Heart Conditions, so if you want to discuss last nights TV, your favourite sport, or just the price of fish, this is the place.

Moderators: Moderator6, Moderator2, Moderator5, Moderator1, moderator7, Moderator3

vitamin D Deficiency

Postby tiggersam » Wed Jul 06, 2011 10:11 am

Hi all

I was just wondering if any fellow GUCHs have been diagnosed with Vitamin D Deficiency and if so what if any treatment they are receiving.

I had a routine blood test when I complained yet again of feeling exhausted and the result came back that I was badly deficient. This was a bit puzzling as I do eat relatively healthy and do get out and about in the sunshine.

I was put on a vitamin D drug I have never heard of and that is imported from Germany by my GP.

I have not noticed any specific improvement yet and am due a blood test in a month or so to see if anything has improved.

Thanks Sam
Repair of VSD and pulomonary stenosis 1972 @ GOSH
RBBB and light leak from pulmonary valve
type two diabetic
Primary Ovarian Failure
oesteoarthritus - bone and joint problems - poss heart related
tiggersam
 
Posts: 203
Joined: Mon Jan 03, 2005 5:45 pm
Location: North London

vitamin D Deficiency

Postby superwoman » Wed Jul 06, 2011 2:13 pm

Hi Sam,

What drug did they give u?

I work for a bone specialist and he recommends boots over the counter 12.5 microgram capsules to loads of patients, I think they take two a day. They get medication from GP if they also need calcium. Might be worth asking.

Either that or go out in the fresh air more as daylight is the natural way to up your levels.

good luck

Gill
superwoman
 
Posts: 640
Joined: Sun Jul 04, 2004 10:34 am
Location: near glasgow, scotland

Postby tiggersam » Wed Jul 06, 2011 6:46 pm

Hi Gill

The Vit D I am on are Dekristol 20,000 unit (lol) I take one every two weeks - As far as I am aware they are relatively new and imported from Germany - which might explain why the little information leaflet was all in German (no English at all )

I realise natural sunlight gives you boost of Vit D but in my case apparently I am so low this will not help me.

I also have Oestopenia and am very near being diagnosed with Oestoporosis - I am under a bone specialist in London and it was his sugguestion to have the Vit D tested in the first place

Sam
Repair of VSD and pulomonary stenosis 1972 @ GOSH
RBBB and light leak from pulmonary valve
type two diabetic
Primary Ovarian Failure
oesteoarthritus - bone and joint problems - poss heart related
tiggersam
 
Posts: 203
Joined: Mon Jan 03, 2005 5:45 pm
Location: North London

Postby Kaline538@hotmail.com » Mon Feb 20, 2012 9:53 am

Hi Sam, my son is Sam also and has the same bone probs as you
he was given calcium and vit d, he has a lot of bone pain and joints
we was told it related to he's longterm warfarin and he will allways have
this.
Kaline538@hotmail.com
 
Posts: 2
Joined: Thu Sep 29, 2011 4:10 pm
Location: London

Re: vitamin D Deficiency

Postby judith » Wed Oct 31, 2012 1:40 pm

Hi,

I too have very low Vitamin D levels, due to being on Warfarin for 36 years and also epileptic drugs.

I now have severe osteoporosis and also an eye condition that I cannot pronounce! Although I was given treatment at a London hospital for this I eventually became intolorant to all the drugs. I now take A high doe Vitamin D drug, Bio-Vitamin D3 1000 IU which I take daily, which I have to buy. My GP will not supply Vitamin D on its own and I was adviced not to have calcium. I think therre could be many more of us older GUCHs with this problem without yet knowing it!

L Judith Parker
judith
 
Posts: 21
Joined: Tue Apr 25, 2006 4:15 pm

Re: vitamin D Deficiency

Postby aghorner » Wed Oct 31, 2012 7:14 pm

Yes I have Vitamin D Deficiency, I take Calcichew which is both a calcium and vitamin D3 supplement twice a day. I'm also osteopenic.

Yours - Antony
Tetralogy of Fallot with Absent Right Pulmonary Artery
Significant Pulmonary Regurgitation with Right Ventricular Dilation
Atrial Flutter

Webmaster for the Somerville Foundation

When requesting technical support please include your username!
User avatar
aghorner
Site Admin
 
Posts: 231
Joined: Wed Jun 30, 2004 10:21 am
Location: Yorkshire

Re: vitamin D Deficiency

Postby Jane2Blue » Thu May 02, 2013 7:22 pm

HIV
Also vitamin D deficient also have history of hyperparathyroidism which is genetic but they had difficulty finding my parathyroid glands in my neck where as they were able to find my mums and my sisters easily so sister has no parathyroid and has to take alphacalcidol all the time not good she has to vary it seasonally due to working mainly outside! And sometimes has to rake supplementary calcium caliche w when she gets symptoms lik pins and needles.

Wonder if my parathyroid glands are diffuse due to the same disfunctionsl process that caused my fallots as the heart develops in the neck region in the embryo.
Jane2Blue
 
Posts: 83
Joined: Tue Nov 27, 2012 5:47 pm

Re: vitamin D Deficiency

Postby Adam » Thu May 02, 2013 7:52 pm

Do you consume products from cows?
Adam
 

Re: vitamin D Deficiency

Postby Jane2Blue » Thu May 02, 2013 10:14 pm

Yes lots of milk some beef far too much cheese! According to endocrinologist is best to go sun bathing in nov 2011 only took a year and onths to get a sample suitable for measuring my but D! Also get it from egg upk apparently! Taking colicalciferol 20,000units to see if it is due to deficiency or I have high parathyroid hormone and we have to go on a long and complicated hyperthyroid tissue hunt! Lots of staying off/ staying up after night shifts for scans and blood tests so hopefully just living dark cold place and working night shift and tested at end of winter always a bit knack eyed in the winter. Isn't predictive spelling great!
Jane2Blue
 
Posts: 83
Joined: Tue Nov 27, 2012 5:47 pm

Re: vitamin D Deficiency

Postby Adam » Fri May 03, 2013 7:32 pm

that'll be part of the problem, lay off the cow secretions...
Adam
 

Re: vitamin D Deficiency

Postby Jane2Blue » Sat May 04, 2013 2:49 pm

Sadly am female and due to certain other drugs according to another doctor my bones will fade away if I don't have lots of calcium but also need bit d to deal with it! Not wishing to spend half ifs nth in a violently dizzy heap in agony Don't think ill be stopping them unless endocrinologist said its absolutely necessary then he'd have a fight it having taken 19 years to find something affective that isn't going to giver a stroke or heart attack or a dvt or pe!
Jane2Blue
 
Posts: 83
Joined: Tue Nov 27, 2012 5:47 pm

Re: vitamin D Deficiency

Postby Adam » Sat May 04, 2013 10:18 pm

if you want calcium - eat dark leafy greens!
Adam
 

Re: vitamin D Deficiency

Postby Jane2Blue » Sun May 05, 2013 1:51 am

Yum spinach possibly iron a good idea too especially if eat less cow products!
Jane2Blue
 
Posts: 83
Joined: Tue Nov 27, 2012 5:47 pm

Re: vitamin D Deficiency

Postby Adam » Sun May 05, 2013 8:36 am

Defo yum!!! Just be aware of the amount of vit K you're absorbing if you're on a blood thinner though.
Adam
 

Re: vitamin D Deficiency

Postby Jane2Blue » Sun May 05, 2013 11:55 am

No lucky. Me not on warfarin never even on rat poison (warfarin) vit K therefore not going to unbalance my clotting too much unless I live enirely on spinach which I suspect I won't,half diet being chocolate at all times! Soooooooo healthy! Aspirin stopped after 87 Borg shilie valve replaced with cadaveric valve so thanks to some poor child dieing in car accident aroud 1987 no anticoagulants for me unless I develop valve problems or atrial fibrillation!
Jane2Blue
 
Posts: 83
Joined: Tue Nov 27, 2012 5:47 pm

Next

Return to Non-heart Related Topics

Who is online

Users browsing this forum: No registered users and 5 guests

cron