introduce yourself, it wont take long.

We're all more than just our Heart Conditions, so if you want to discuss last nights TV, your favourite sport, or just the price of fish, this is the place.

Moderators: Moderator6, Moderator2, Moderator5, Moderator1, moderator7, Moderator3

Postby Nails » Mon Aug 03, 2009 12:52 pm

Name: Kelly Crosswell

Age: 29

Lives: Bury, Manchester

Occupation: Full-time Mum

Type of CHD: TGA

Family: Married with 2 children Abigail aged 7 andChristopher aged 5 and a cat called bushey.

Fav Music: Nearly everything

Fav Food: Everything thats bad for you mmmm chocolate

Hobbies: Shopping and sleeping
transposition of the great vessels
mustard procedure
repair of aortic coarctation
Nails
 
Posts: 22
Joined: Wed Apr 29, 2009 10:34 am
Location: Manchester

Postby timmer » Mon Sep 07, 2009 9:27 am

[b]Name:[/b] Tim Bond
[b]Age:[/b] 28
[b]Lives: [/b]Bristol
[b]Occupation:[/b] Optical Dispenser
[b]Type of CHD:[/b] Tricuspid artresia
[b]Family:[/b] my parents & 4 elder brothers
[b]Fave Music:[/b] Dance and Pop
[b]Fave Food[/b]: Indian hmmmm yummy!

Hobbies: am dram, carnival
timmer
 
Posts: 8
Joined: Mon May 25, 2009 7:39 pm
Location: Bath

Introduce myself

Postby Karl Pinches » Tue Sep 15, 2009 11:42 am

Name: Karl Pinches

]Age: 37

Lives: South Staffordshire

Occupation: Young People's advocate

Type of CHD?
Pulmonary Stenosis with Valvotomy in 1981
Pulmonary Valve replacement & PFO closure Aug 09
Cerebellar infarct (from injury) Aug 05

Family: Wife/ 16yr old daughter

Fav Music: Rock/ Hip Hop/ Rap/ Grateful Dead.

Fav Food: Italian / Vegetarian/ BEANS ON TOAST!

Hobbies/ interests:
Mountain Biking (and building bikes/ trails)
Martial Arts (teach kick boxing / Escrima/ MMA
Painting/ sculpture
The endless road is the one with the endless way...
Karl Pinches
 
Posts: 3
Joined: Sun Sep 13, 2009 6:37 pm
Location: South Staffs

Postby Teresa » Tue Oct 20, 2009 7:34 pm

Hope nobody minds me adding on here, im new :D

Name: Teresa Hawes

Age: 22

Lives: Plymouth, Devon

Occupation: F/T mum

Type of CHD?
VSD and floopy mitral valve

Family: Engaged and 1 yr old son who also has a CHD.

Fav Music: RnB and pop.

Fav Food: Chinese, cheese and pasta

Hobbies/ interests:
Swimming, spending time with my family and friends and writing poems.
Teresa

VSD and abnormal Mirtal Vavle

Also have a son with an ASD, hypoplastic RV, small PV and abnormal Tricuspid Vavle.

Missing mum who became an Angel 27/9/09 from Endocarditis. xxx
Teresa
 
Posts: 3
Joined: Tue Oct 20, 2009 7:07 pm
Location: Plymouth, Devon

Postby Ellie1987 » Tue Nov 17, 2009 12:25 pm

Have only just joined so thought I'd add myself to the list.

Name: Elspeth

Age: 23

Lives: Aberdeen

Occupation: Psychology Student

Type of CHD: Pulmonary Atresia with intact septum and hypoplastic RV

Family: None yet! Do have 3 sisters and 4 brothers

Fav Music: Rock/Metal/Old school dance/Industrial/Electronica - lots really!

Fav Food: Italian

Hobbies/ interests: Music, books, films, games
Ellie1987
 
Posts: 10
Joined: Tue Nov 17, 2009 11:59 am
Location: Aberdeen

Postby SRHumphreys » Sat Feb 20, 2010 1:34 pm

[b]Name:[/b] Sallie Rebecca Humphreys

[b]Age:[/b] 19

[b]Lives: [/b] Shropshire

[b]Occupation:[/b] Student, studying Illustration at Loughborough Uni.

[b]Type of CHD:[/b] Holt-Oram Syndrome (hand-heart Syndrome- affects upper limbs and heart. ASD (repaired in 1992) Atrial Flutter (repaired by catheter ablation in 2009) Sinus Node Disease, Pacemaker fitted 2010.

[b]Family:[/b] Mum, Dad and an older sister Olivia, who lives and works in London

[b]Fave Music:[/b] Anything, especially Indie then a bit of Soul and Motown!

[b]Fave Food[/b]: Anything, especially chocolate!
SRHumphreys
 
Posts: 6
Joined: Mon Feb 15, 2010 11:30 am

Postby kadahl » Sun Feb 21, 2010 9:34 pm

Name: Karolina

Age: 24

Lives: Sweden

Occupation: Jewelry store manager

Type of CHD: Truncus Arteriosus Communis type 1, ASD + VSD

Family: A boyfriend (who had a VSD!)

Fav Music: Instrumental piano/Rock/Ska/Musicals/90's pop

Fav Food: Asian (chinese/japanese/thai)

Hobbies/ interests: Drawing, pets, movies, socializing
~ Karolina ~
Truncus Arteriosus Communis, ASD & VSD
--------------
1986 ASD & VSD fixed, new conduit inserted.
1998 Conduit replaced.
2000 New aortic (pig) valve inserted.
2003 Conduit replaced.
2011 Aortic valve (bovine) replaced jan 20
User avatar
kadahl
 
Posts: 56
Joined: Tue Oct 25, 2005 6:46 pm
Location: Sweden

Postby Rosie » Tue Mar 09, 2010 6:55 pm

HELLO!!!

Name: Rosie

Age: 22

Home town: Bristol (but grew up in the Rhondda)

CHD: Tetralogy of Fallot repaired in 1989. Currently asymptomatic with pulmonary regurgitation and awaiting a plan for replacement!

Occupation: Student

Family: None planned anytime soon!

Interests: Most of my time is taken up studying (Medicine) but in my spare time I enjoy catching up with friends and family that I don't get to see often enough, reading, playing the violin in one of the uni orchestras.
ToF correction 1989
PVR 2010
Rosie
 
Posts: 38
Joined: Mon Mar 08, 2010 11:40 pm
Location: Bristol (and Wales)

Postby maddespring » Sat Jan 08, 2011 8:59 am

Name: Madeleine Karlsson

Age: 35 this year :)

Lives: Sweden near Gothengurg

Occupation: Live in a rebuild church and work with medical home help service

Type of CHD: Truncus arteriosus communis type 2 and some other stuff that they fixed when i was young.

Family: 13 year daughter and my parner and his 2 kids 12 and 13 years old 1 cat and 1 snake

Fave Music: Listen to all musik depending on my mood

Fave Food: Spicy food, indian and thai prefered

There is hard to say what i like to do to many stuff is fun, travel, reading, playing computer games etc
Learn something new every day
maddespring
 
Posts: 5
Joined: Sat Jan 08, 2011 8:45 am
Location: Sweden

Postby Sarah_Louise » Mon Jan 17, 2011 6:59 pm

Name: Sarah

Age: 17

Lives: UK, Cumbria

Occupation: A-level student

Type of CHD: Truncus Arteriosus type 2, with conduit & large VSD

Family: Mum, dad, brother and sister

Fav Music: R&B

Fav Food: Pasta

Hobbies/ interests: Music, films, being with family & friends :D

Luv Sarah xx
18, Truncus arteriosus type 2 & Large VSD, 4 OHS:
1.Re-plumb of heart & VSD closure
2.Conduit pipe replacement
3&4.Aortic valve replacment
5.Pericutaneous pulm valve replacement
2 Embolectomies, strokes
clots on lungs, heart, legs & brain
Sarah_Louise
 
Posts: 50
Joined: Thu May 28, 2009 2:27 pm
Location: Cumbria, UK

Postby pameasor » Sun Jun 03, 2012 9:59 am

]Name[/b]: Pauline Measor
[b]Age[/b]: 34

[b]Lives[/b]: Hartlepool

[b]Occupation[/b]: Civil Servant

[b]Type of CHD[/b]? Pulmonary atresia. 1st waterston shant 1978, second waterston 1984 and corectinve surgery 1989. All at newcastle freeman.

[b]Family[/b]: Mother, Brother and loads of cousins.

[b]Hobbies/b]: ten pin bowling, cooking, Swimming, crossstich, crocheting, crosswords and jigsaws( not at the same time). Also traveling

[b]Fav Food[/b]: anything with spices (the hotter, the better)
pameasor
 
Posts: 12
Joined: Thu May 31, 2012 12:14 pm
Location: hartlepool

Postby Bennelee » Sat Jun 09, 2012 7:43 pm

Name: lee Bennett
Age: 34
Lives: ross-on-wye
Occupation: outdoor advertising
Type of CHD: cctga congenitally corrected transition of the great arteries
hole in the heart now closed
stage 1 heart block
Family: 2 boys, dexter 14 months and Jacob 8 weeks
Music: anything that sound good
Food: pizza and Chinese
Bennelee
 
Posts: 45
Joined: Sat Jan 07, 2012 11:12 am
Location: Ross on wye

Postby jetaxebabez » Thu Sep 06, 2012 10:57 am

Name: Catherine d'alquen ( Cat)

Age: 27

Lives:Gloucester

Occupation: Do not work awaiting op.

Type of CHD: truncus arteriosus type 1 + VSD

Family:Married for 10 years in November

Fave Music: WESTLIFE lol

Fave Food: Cheesy Chips :D :) :) :)



Diagnosis:
Truncus artertious type 1
RV To Pulmonary artery homograft and VSD clousure 1984
Redo RV To Pulmonary artery homograft 1993
Post-operative mediastinitis
Severe re-stenosis of RV TO PA homograft with supra systemic rv pressure
Balanced chromosome 10/14 translocation
Truncus artertious type 1
RV To Pulmonary artery homograft and VSD clousure 1984
Redo RV To Pulmonary artery homograft 1993
Post-operative mediastinitis
Severe re-stenosis of RV TO PA homograft with supra systemic rv pressure
jetaxebabez
 
Posts: 27
Joined: Fri Aug 31, 2012 11:55 am
Location: Gloucester

Re: introduce yourself, it wont take long.

Postby judith » Wed Oct 31, 2012 4:26 pm

Name: Judith Parker

Age: 52(next week)

Lives: Haddenahm Buckinghamshire

Occupation: Volunteer for GUCH, previous Thames Valley Police

Hobby Wrriting, socialising

Type of CHD: Pulmonary Artery widened, AVSD, Mitral valve replacements (3), 5 Paceakers, heart failure.

Family: Married 20 years

Fave music: Chris De Burgh, Fleetwood Mac, Meat Loaf

Fave Food: Italian

Diagnosis:
AVSD (corrected)
AF, AFlutter, VT
Heart Failure
Scholiosis
Osteoporosis
Epilepsy
Arthritis
Manacular Degeneration
judith
 
Posts: 21
Joined: Tue Apr 25, 2006 4:15 pm

Re: introduce yourself, it wont take long.

Postby Adam » Mon Nov 12, 2012 7:51 pm

Name: Adam

Age: 33 , born June '79

Lives: Southampton

Occupation: I own a call centre.

Type of CHD? Mustard TGA.

Family: Not yet!!!

I'd love to chat to anyone on here, and offer support in any way that I can. Please, do get in touch. :)
Adam
 

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