Hi i'm new >_<

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Hi i'm new >_<

Postby N00blette » Thu May 03, 2012 6:04 pm

My name's Viv. i've just recently turned 17. :)
I have tetralogy of fallot and am soon to have an operation to replace my pulmonary valve. And because of that, I've been starting to feel more down the closer the operation date...
Has anyone have the same heart problem as me?
Posts: 1
Joined: Thu May 03, 2012 5:45 pm
Location: London

Postby Sarah_Louise » Tue May 08, 2012 7:32 pm

Hey Viv,
I'm 18 and had 4 OHS, and waiting to go in for a pulmonary valve replacement, although i was born with truncus arteriosis rather than fallots,
Love Sarah xxxx
18, Truncus arteriosus type 2 & Large VSD, 4 OHS:
1.Re-plumb of heart & VSD closure
2.Conduit pipe replacement
3&4.Aortic valve replacment
5.Pericutaneous pulm valve replacement
2 Embolectomies, strokes
clots on lungs, heart, legs & brain
Posts: 50
Joined: Thu May 28, 2009 2:27 pm
Location: Cumbria, UK


Postby sally101 » Wed May 09, 2012 5:53 pm

Hey! im Sally and i do have tetralogy of fallot, and 5 months ago had open heart surgery for an valve replacement , now have a tissue valve. I was treated at Bristol BRI.

I felt low and down , but when i got told my opeperation date , they told me on the 19th decemember and booked for 22nd. it was more of a shock to me , didnt get much notice. but i did feel low and down. My nurse told me before it was normal to feel this.
If you have any questions or worries , im happy to chat :)
Hope everything goes ok, All the best
Posts: 38
Joined: Fri Jan 21, 2011 7:21 pm
Location: UK

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