Absent Pulmonary Valve with Tof

A place for GUCH Patients and their families to exchange experiences and gain support. So please feel free to ask any questions you may have.

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Absent Pulmonary Valve with Tof

Postby James G » Mon Oct 10, 2016 6:47 am

Hi my wife and I were told on friday after her 19 week scan that the baby has TOF with Absent Pulmonary Valve, I myself have posted on this site before as i have TOF but to know that this is even rarer I was hoping for anyone on here to help and give advise, I want my wife to continue witht he pregnancy and give her a chance but the Doctors seem to be negative any advise thankyou.
James G
 
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Joined: Tue Jan 05, 2016 2:20 pm

Re: Absent Pulmonary Valve with Tof

Postby Tricky Dicky » Tue Oct 11, 2016 1:03 pm

Hi James, sorry to hear about your babies diagnosis. I don't know anything about TOF with Absent Pulmonary Valve, but there might be somebody on the somerville facebook page who knows something (it is a bit more lively than this forum).

Could you discuss it with the GUCH nurses at your hospital??

PS PinkHawk23 who posts on the American forum has TOF with Absent Pulmonary Valve

http://forum.achaheart.org/viewtopic.ph ... t&start=15
Tricky Dicky
 
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Location: Camberley

Re: Absent Pulmonary Valve with Tof

Postby James G » Mon Oct 17, 2016 7:43 am

Thankyou will try there.
James G
 
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Joined: Tue Jan 05, 2016 2:20 pm


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