Pulmonary Valve Replacement

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Pulmonary Valve Replacement

Postby Tony_S » Fri Oct 24, 2014 8:08 pm

Hello,
Our 12 year old daughter will be have an open heart pulmonary valve replacement. Have any of you/ your children had the same or similar operation? What have your experiences been? What type of valve did your child have? We would be interested to know!
Thank you!
T&I
Tony_S
 
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Re: Pulmonary Valve Replacement

Postby Forlyd » Mon Oct 27, 2014 9:52 pm

Hello Tony,
39 years ago I was the daughter. I had a "Piggy Pulmonary Valve" to replace my own badly leaky valve. Now my piggy valve is beginning to fail, but hey, it gave me 39 years extra so far !
I am talking 1975! The surgery now is so much more reliable. A lot has been learned since my op.
Best wishes to your daughter and give her a big hug from 66 year old Lydia.
Tof,Pulmonary valvotomy 1952,Pott's shunt 1955,Pott's correction-VSD & dacron graft with Hancock valve 1975. Ablation 2001.Bivent.fail & AF 2002. Cardioversion 2002.Paroxy AF 2002. Ostial stenosis right CA. Cardiac arrrest-ICD 2004. In AF-vent/pacing.
Forlyd
 
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Location: Newcastle-upon-Tyne

Re: Pulmonary Valve Replacement

Postby Sctb78 » Tue Oct 28, 2014 10:25 am

Hi Tony,

I had my PVR six weeks ago. I think it's a tissue valve inside a conduit made from bovine heart tissue. I'm doing ok, the surgery went well and my recovery seems to be going to plan, not as fast as i would have liked though!

The stress of waiting for the surgery date is honestly the worst part of it.

Scott
Sctb78
 
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Re: Pulmonary Valve Replacement

Postby Tony_S » Tue Oct 28, 2014 7:19 pm

Hi Lydia & Scott,
I have PM'd you both!
Tony_S
 
Posts: 5
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Re: Pulmonary Valve Replacement

Postby Tony_S » Tue Oct 28, 2014 7:25 pm

Hi Lydia and Scott,
Just realised I don't know hi to Pm someone :oops: but I just wanted to say thank you for your reassuring message. We don't know exactly when she is having the op yet so it is a bit of a waiting game but all your information has been really helpful.
Thanks again,
T&I
Tony_S
 
Posts: 5
Joined: Fri Oct 24, 2014 8:03 pm

Re: Pulmonary Valve Replacement

Postby Sctb78 » Thu Oct 30, 2014 7:50 pm

Hi Tony,

If you would like any more information I can PM you my email address.

Let me know :D

Scott
Sctb78
 
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Re: Pulmonary Valve Replacement

Postby Forlyd » Thu Oct 30, 2014 10:37 pm

Tony,
If you want to send a private message to anyone, just left click the little "PM" icon in the panel to the extreme right of their ordinary post. Nobody is going to get flustered if you make a mistake when trying to send a private message.
Take good care of yourselves, love from Lydia.
Tof,Pulmonary valvotomy 1952,Pott's shunt 1955,Pott's correction-VSD & dacron graft with Hancock valve 1975. Ablation 2001.Bivent.fail & AF 2002. Cardioversion 2002.Paroxy AF 2002. Ostial stenosis right CA. Cardiac arrrest-ICD 2004. In AF-vent/pacing.
Forlyd
 
Posts: 231
Joined: Mon Feb 09, 2009 2:04 pm
Location: Newcastle-upon-Tyne


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