Hospital ratings

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Hospital ratings

Postby caz » Tue Mar 11, 2014 7:28 pm

Hello.

Hope your all well. Just a quick one...I am a GUCH patient at Birmingham QE but live in Sheffield. It would make sense for me to move to the Leeds GUCH clinic location wise but I have been with Birmingham since birth and they have kept me here this long...so i am a bit worried about moving. Does anyone know where I can find any official data or statistics on which hospital is better. I have found lots of reviews and things from patients and stuff but wanted more official data really to help me choose. Or does anyone here go to Leeds and would recomend it (or not).

Thanks for your help. Caz
Waterston Shunt
Left modified Blalock-Taussig Shunt.
PA reconstruction, shunt take down,
new aorto-pulmonary shunt.
PA reconstruction, shunt take down.
Fenestrated Fontan (1994)
Cardioversion (2009)
Ablation (2010)
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Re: Hospital ratings

Postby Mustard » Tue Mar 11, 2014 10:02 pm

tons of league tables on the hospital sites themselves , but to be fair - the best thing you can do to beat the odds is get yourself in the best shape possible!
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Re: Hospital ratings

Postby aghorner » Wed Mar 12, 2014 10:38 pm

I'm a patient at Leeds and I've always found them very good, If I have any questions they're only an email away, and if I need an urgent appointment I can usually get one in a week or two.

Yours - Antony
Tetralogy of Fallot with Absent Right Pulmonary Artery
Significant Pulmonary Regurgitation with Right Ventricular Dilation
Atrial Flutter

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Re: Hospital ratings

Postby wendy knowles » Sun Mar 16, 2014 9:49 pm

Hi Caz.
I think we may have met at LHM open day last year? I also go the QE Birmingham GUCH unit. I transferred my care to the QE from a another GUCH unit nearly 4 years ago now A. Because it was an easier GUCH unit to travel to and B. Its one of the specialised units from what I understand in single ventricle anatomy and conditions.
Making the move to a different unit is an extremely difficult decision to make and only you can make alone. For me personally it was difficult, but with more straightforward travel plans/ arrangements for appointments and inpatient stays as my health deteriorates this is what persuaded me.
Good luck with your decision. Hope to see you at LHM open day again on the 22nd march.

Wendy.
Tricuspid Atresia
Waterston Shunt-1975
Modified Fontan-1982
Angioplasty of RA-RPA connection-1995
Ablation Procedure-2008-Unsuccessful!
Conversion of my original fontan too high risk. 31 years post original fontan!! Retired from work on ill health grounds
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Re: Hospital ratings

Postby paula-43 » Mon Mar 17, 2014 8:01 pm

Hi caz,
I go to the QE Birmingham and have for the last 17ish years in 2006 I moved to the highlands in Scotland and transferred my care to Edinburgh, I was not happy or confident with the care I received, so I went back to the QE Birmingham( I now receive all medical treatment their from cario to Gyne !!) and although it's hard sorting out travel and accommodation my health is my priority, it's a hard decision to make but maybe if you discuss it with your consultant you may have a chance to go to leeds and if for any reason your not happy go back to QE

Hope all works out for you x

Paula
TETRALOGY OF FALLOT
REPAIR 1973
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Re: Hospital ratings

Postby rob4001 » Fri Mar 21, 2014 4:37 pm

paula-43 wrote:Hi caz,
I go to the QE Birmingham and have for the last 17ish years in 2006 I moved to the highlands in Scotland and transferred my care to Edinburgh, I was not happy or confident with the care I received, so I went back to the QE Birmingham( I now receive all medical treatment their from cario to Gyne !!) and although it's hard sorting out travel and accommodation my health is my priority, it's a hard decision to make but maybe if you discuss it with your consultant you may have a chance to go to leeds and if for any reason your not happy go back to QE

Hope all works out for you x

Paula


Hi Paula
How did you manage to transfer your care from Edinburgh? I am in a similar position I live in rural wales the easiest GUCH clinic for me to get to is Birmingham as its a 3 hour train ride Direct to Birmingham. Because I live in Wales I was told its not possible to be treated their for financial reasons. So I go to Cardiff if I get the train to Cardiff I have to go via Birmingham and its 5 hours! Luckily I drive at the moment so its a 3 hour drive but its a tiring experience to do a 6 hour round trip in the car.

Also I know there a league tables for hospitals but would be interesting to hear waiting times for various hospitals in regards to tests or Scans. I'm aware in Manchester and Cardiff its around 32 weeks for a cardiac MRI and about 20 for Cardio pulmonary exercise test.
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Re: Hospital ratings

Postby Ellie1987 » Mon Mar 24, 2014 6:02 pm

I'm glad I didn't move my care from Scotland (and no not Edinburgh!). I have been with the same clinic for 10 years but am now in Wales, there seem to be a lot of stories about hospital ratings and poor care. Luckily my cardiologist gave me the choice of sticking with them and they simply wrote to the nearest one (they said Bristol for me?) to let them know I was here in case there are any emergencies.
Pulmonary atresia with intact septum & hypoplastic RV
Fontan Repair
1987: left & right BT shunts
1993: bi directional Glenn
1999: modified fenestrated Fontan with Goretex graft from IVC to RA & Amplatz closure of fenestration
1999 to ?: on warfarin
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Re: Hospital ratings

Postby Forlyd » Mon Mar 24, 2014 6:28 pm

Hello Caz,
Afraid can't help with the rating of LG. But, if you were not happy with the LG, I can't imagine that you would be refused a return to Birmingham ! I have been with the Freeman Newcastle since 1977 when it first opened. I cannot fault the care I have had there. But, having said that, I would think that no cardio hospitals would be allowed to exist if they did not provide really good care ? You are right to make enquiries, but I would say the best way is to try them and see ?
Take good care of yourself.
Love from Lydia.
Tof,Pulmonary valvotomy 1952,Pott's shunt 1955,Pott's correction-VSD & dacron graft with Hancock valve 1975. Ablation 2001.Bivent.fail & AF 2002. Cardioversion 2002.Paroxy AF 2002. Ostial stenosis right CA. Cardiac arrrest-ICD 2004. In AF-vent/pacing.
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Re: Hospital ratings

Postby sean » Wed Apr 06, 2016 4:38 am

I'm a patient at Leeds, was art Killingbeck in Leeds before it closed and now at lgi, without the staff at lgi I wouldn't be here now, really friendly helpful, even when I was suffering really bad depression during my divorce they helped me get the help I needed.
Ebstiens Anomaly .
Cardioversion
Tricuspid Valve Replacement
Modified left and right atrial maze procedure
Dual chamber Pacemaker
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Re: Hospital ratings

Postby paula-43 » Wed Apr 27, 2016 3:57 am

rob4001 wrote:
paula-43 wrote:Hi caz,
I go to the QE Birmingham and have for the last 17ish years in 2006 I moved to the highlands in Scotland and transferred my care to Edinburgh, I was not happy or confident with the care I received, so I went back to the QE Birmingham( I now receive all medical treatment their from cario to Gyne !!) and although it's hard sorting out travel and accommodation my health is my priority, it's a hard decision to make but maybe if you discuss it with your consultant you may have a chance to go to leeds and if for any reason your not happy go back to QE

Hope all works out for you x

Paula


Hi Paula
How did you manage to transfer your care from Edinburgh? I am in a similar position I live in rural wales the easiest GUCH clinic for me to get to is Birmingham as its a 3 hour train ride Direct to Birmingham. Because I live in Wales I was told its not possible to be treated their for financial reasons. So I go to Cardiff if I get the train to Cardiff I have to go via Birmingham and its 5 hours! Luckily I drive at the moment so its a 3 hour drive but its a tiring experience to do a 6 hour round trip in the car.

Also I know there a league tables for hospitals but would be interesting to hear waiting times for various hospitals in regards to tests or Scans. I'm aware in Manchester and Cardiff its around 32 weeks for a cardiac MRI and about 20 for Cardio pulmonary exercise test.



Hi Rob my very fist consultation in Edinburgh was a disaster I was told I was over re-acting and a hypercondriac the fact I was very breathless blue lips etc and in AF and had been for about 18 months! Seemed totally irrelevant so when I got home rang my previous consultants secretary and explained what had happen and I wanted to go back to the QE she told me that would be ok I just had to go through the proper channels and ask my GP to refer me back which my GP did and I was back in QE within weeks having a pacemaker fitted! That was 10 years ago !
TETRALOGY OF FALLOT
REPAIR 1973
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