A place exclusively for people aged 39 and over to discuss issues affecting older GUCHs

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Postby flowerdee » Thu Jan 23, 2014 9:23 pm

I,m hoping u can help , I have eisenmenger syndrome with pulmonary hypertension , only know under a yr and not coping very well with it all , not sure how this all works but any help I would b greatful
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Re: hiya

Postby elizabeth » Fri Jan 24, 2014 8:16 pm

Hi, Flowerdee


I have a different condition but I know how scary it can be dealing with this stuff when it gets in the way of doing what you want. I find it very helpful to meet others in the same boat and talk about it.

Not sure when the next event is but to start the talking, you can ring the Somerville Foundation helpline: http://www.thesf.org.uk/contact-us/helpline.aspx and talk to someone who understands.

Hope you can start to work out how to live to best effect with this.
TGA - 1976, Mustard 1977 & baffle repair 1984.
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Re: hiya

Postby flowerdee » Fri Jan 24, 2014 9:16 pm

thank you my ph nurse is going email ann ,soz cant remember her last name ,
I just seem 2 b having more bad days than gd at the moment
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Re: hiya

Postby Mustard » Fri Jan 24, 2014 11:52 pm

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